FAQs

Welcome to MyClusters! This section will help you understand our features, how they work, and also our privacy measures 

Recording Your Headaches

Essential Information

The only information you absolutely need to track  is:

  • When your headache started (date and time)

  • When your headache ended (date and time)

You can quickly log these details and return later to add more information when you're feeling better. I know I can’t think of tracking anything during an attack, so I use it after my attack has stopped. 

Additional Details

While not required, recording additional details helps build a more complete picture of your attack.. For each record, you can add:

Pain Level Assessment: On a scale of 1 to 10. 

Location Tracking You can specify where the headache occurs using these options:

  • Right side (behind the eye)

  • Left side (behind the eye) 

  • Forehead 

  • Top of head 

  • Back of head

While some of these locations may not necessarily indicate cluster headaches, it is useful for you to discern which headaches are cluster headaches. 

Medications and Triggers: Record any medications you've taken and potential triggers you've identified. 

Managing Your Headache History

The Recent History section serves as your comprehensive headache diary. Here's how to make the most of it.

Viewing and Editing Records

Every recorded attack appears in your history. You can:

  • View complete details of any attack by clicking on that record

  • Add information to partial records

  • Correct mistakes in existing records

  • Delete  incorrect entries

  • Filter entries by date range

  • Sort attacks by most recent or earliest occurrence

Import/Export

Exporting Records: You can export your entire history as a CSV file. This is useful for:

  • Keeping personal backups

  • Sharing with healthcare providers

  • Analyzing your data in other tools

Importing Previous Records: If you're switching from another tracking method, you can import your historical data through a CSV file. We cannot accept any incomplete rows in this file, and you will get an error. 

Here's exactly how to format your data:

Required CSV Format:

Pain_level,location,start_date_date,start_date_time,end_date_date,end_date_time,medications,triggers


You can copy the above into your excel to make sure the column headings match. 

Formatting Rules:

  1. Dates must use YYYY-MM-DD format (example: 2025-02-05)

  2. Times must use HH:mm:ss format (example: 22:49:29)

  3. Location must be indicated as:

    • 'l' for left side

    • 'r' for right side

    • ‘tl’ for top of head 

    • ‘fr’ for forehead

    • ‘b’ for back of head

  4. Pain level must be a number from 1-10

  5. Multiple medications or triggers must be:

    • Separated by commas

    • Enclosed in quotes

Example CSV line:

1,l,2025-02-05,22:49:29,2025-02-05,22:49:29,"Calan,Verapamil","Bad Sleep,Strong Smells"

If you get an error, please check 

  • That the column headings are in the right format and don’t use any capital letters 

  • Format of date and time are right. You can change these on Excel under format 

  • Remember to include the first 0 in case of midnight attacks

  • Any incomplete entries 

Understanding Your Reports

The Reports section transforms your logged data into meaningful insights that can help you and your healthcare providers better understand your condition. Here’s how I used the reports to understand my last cycle

Available Visualizations

Headache-Free Days: Shows the number of headache free days in the selected time range. 

Attack Patterns The scatter plot visualization shows:

  • When your headaches occur

  • Duration through color coding

  • Potential clustering patterns

Duration and Intensity Analysis These graphs reveal:

  • How long your headaches typically last

  • Whether pain levels are changing over time

  • Patterns in attack severity

Medication and Trigger Tracking The reports show:

  • Your most frequently used medications

  • Common triggers from your logs

  • Correlations between treatments and outcomes

Location Analysis A pie chart displays which areas of your head are most affected, helping identify consistent patterns in your headache location.

Time Patterns This visualization shows when your headaches typically occur throughout the day, helping you prepare for and potentially prevent attacks.

Profile Management

Your profile provides a comprehensive snapshot of your condition, making it easy to share information with healthcare providers or track changes over time.

Profile Information

During onboarding, we ask about:

  • Preventive medications you take

  • Lifestyle habits

  • Diagnosis status

  • Other relevant health information

Remember, all profile fields are optional. You can:

  • Skip information during signup

  • Complete missing information later

  • Update details as your condition changes

Sharing Options

Your profile page is a visual overview of all your disease characteristics in one page. If you find yourself having to explain the details of your attacks,diagnosis status, where it hurts, how long and how often you get them, this is an easy way to capture that information. If you want to ask questions within the community, reading your profile also helps others to quickly understand your characteristics. There is no identifiable information in the profile (We don’t collect your name or your exact location, only your country)

Share your profile easily through:

  • Screenshots

  • Generated public links

  • Direct WhatsApp sharing

Account Settings

The Account Settings page gives you complete control over your app experience.

Language Preferences

  • Switch between available languages

  • More languages added regularly. If you want to request your language please email feedback@myclusters.nl

Data Sharing Controls

Manage how your data is used

  • Change or withdraw consent anytime

Account Management

  • Change your password

  • Sign out of your account

  • Request your stored data

  • Permanently delete your account (We advise you to download your headache records before deleting your account)

Privacy and Security

Your privacy and data security are fundamental to MyClusters.

Data Protection

We maintain the highest standards of data protection:

  • GDPR compliance 

  • Strong encryption methods

  • Privacy-optimized database structure

  • EU-based servers

Data Collection Philosophy

We follow strict data minimization principles:

  • Only collect essential information

  • No full names required

  • No address collection

  • No unnecessary personal details

Research Contribution

Your data can help advance headache research while maintaining your privacy:

  • All shared data is completely anonymized

  • Cannot be traced back to individuals

  • Helps provide valuable real-world evidence

  • Supports scientific research

  • You control when to consent or withdraw

  • You control what you share (don’t fill in any details you are not comfortable sharing) 

Getting Help

If you need assistance:

  • Email support at info@myclusters.nl

  • Visit other pages for more resources